Please click here to order your copy of Worth the Ride: My Journey with Duchenne Muscular Dystrophy. All proceeds go to Parent Project Muscular Dystrophy (PPMD)
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Please click here to order your copy of Worth the Ride: My Journey with Duchenne Muscular Dystrophy. All proceeds go to Parent Project Muscular Dystrophy (PPMD)
My life with Duchenne muscular dystrophy:
The Good, the bad, and the ugly
Please click here to order your copy of Worth the Ride: My Journey with Duchenne Muscular Dystrophy. All proceeds go to Parent Project Muscular Dystrophy (PPMD)
Name: Josh Winheld
Location: Philadelphia, PA winheldsworld@gmail.com
Location: Philadelphia, PA winheldsworld@gmail.com
About Me: Diagnosed with Duchenne muscular dystrophy (DMD) when I was 4 1/2 years old, I have been in a motorized wheelchair since age 10. Now 31, I have been ventilator-dependent for seven years. Despite my disease, I have strived to live as normally as possible. I was mainstreamed in public schools, graduated college with a journalism degree, and am currently pursuing a master's degree in urban studies.
Winheld's World chronicles my daily experiences in living with DMD and with a disability in general. I also use this blog to promote my autobiography, Worth the Ride: My Journey with Duchenne Muscular Dystrophy (iUniverse, 2009).
Other DMD Blogs
Other Disability Blogs
muscular dystrophy Links
accessible technology
Disability legislation
Blog Archive
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2008
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October
(6)
- Phinally!After 25 years, a parade down Broad Stree...
- We Are the ChampionsSince becoming a sports fan 15...
- Center of AttentionNo, I didn't get any phone numb...
- Breathe EasyI remember some of the misconceptions ...
- Coming AttractionThanks to the tighter turning rad...
- I'm BackYou may have noticed that I have not poste...
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October
(6)
7 comments:
Awesome. So glad you could make it (jealous!!!).
Very cool Josh! I remember going to downtown Buffalo after the Norwood "far right", and that was pretty exciting... I think that was as close as we have ever come to an all the way win... Maybe someday Buffalo will be able to play that song too :)
Hi Josh, I linked to your blog through Food Network Musings where Sue has you linked. How amazing was that week leading up to the Fightin' Phils winning the World Series!! I am from outside Philly and watched the parade on tv. But you got to SEE it! I've enjoyed reading your blog, I'll bookmark it and check back soon. Great writing !!
What an amazing day!! I put my pictures up on facebook. Go Phils!!!!
Congrats. So sweet you were inside to watch this! I am pumped for you man!
Pat
Josh,
Thanks for finding my blog through the New York Times.
Your blog is great - I've added it to my blogroll - the first non-cancer one on the list! Sure our diseases are different, our care varied, but I think us 20 and 30 somethings living with any kind of illness have a lot of good advice to share with each other. Feel free to link to mine on yours if you wish.
Maybe you'd like to be a guest blogger on my blog someday? Let me know.
Best,
Kairol
Josh,
WHAT in the world is Prothonotary Department? It sounds scary.
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