
Thursday, May 01, 2008
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My life with Duchenne muscular dystrophy:
The Good, the bad, and the ugly
About Me: Diagnosed with Duchenne muscular dystrophy (DMD) when I was 4 1/2 years old, I have been in a motorized wheelchair since age 10. Now 31, I have been ventilator-dependent for seven years. Despite my disease, I have strived to live as normally as possible. I was mainstreamed in public schools, graduated college with a journalism degree, and am currently pursuing a master's degree in urban studies.
Winheld's World chronicles my daily experiences in living with DMD and with a disability in general. I also use this blog to promote my autobiography, Worth the Ride: My Journey with Duchenne Muscular Dystrophy (iUniverse, 2009).
4 comments:
very cool. I cannot wait to hear of more signings, and more sales. The word is spreading, and you are making it happen.
Kudos my friend.
Pat
Pat, I couldn't agree more. Way to go, Josh!
When are you coming to Texas for a signing ;) I just finished reading your book today. I was sad when I came to the end,I wanted the 'story' to never end! Thank you for sharing your life. I have a 14 year old son with Duchenne. This book gives me another perspective on his possible thoughts and feelings living with Duchenne. Congratulations on a beautifully written book.
Congratulations on all your success! That must have been one hell of a high - signing books and being all famous and what not! Seriously - congrats, and I wish you the best!
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