Please click here to order your copy of Worth the Ride: My Journey with Duchenne Muscular Dystrophy. All proceeds go to Parent Project Muscular Dystrophy (PPMD)

Thursday, March 04, 2010

I have been trying to get the word out to national news sources about Josh and all that he did, including writing this blog, and his book. So far I have had no success doing this, despite sending the letter I wrote out twice. My new idea is to have people who knew Josh send in letters about him and all the good he did, as well as any personal stories where Josh helped you, to these same sources. The more letters/e-mails regarding Josh, the more likely someone may stand up and take notice. I am asking that those of you out there who would like to help please send your letters to:

CNN -->
Nightly News with Brian Williams -->
TODAY --> Please send story ideas to Noah Kotch, Senior Producer, 379E-1, 30 Rockefeller Plaza, New York, NY 10112 OR e-mail -->
Ellen Degeneres -->
Oprah Winfrey (specifically for her book club) -->

Like I said, anything you could do to help would be greatly appreciated. And as it is March 4th, happy birthday Josh, we all love and miss you.


Stephanie (the younger of the two sisters)


souldose said...

I will try to write as soon as I get the strength to use the computer. Happy Birthday Josh, your memory and legacy lives on.

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Krysta said...

I am a friend of Josh's who works in Public Relations (basically trying to get the media to cover my company news) and have some thoughts about how to get the word out there. Drop me a line if you want to talk. Krysta Pellegrino

UA-communication-research said...


My name is David Keating and I am a student at the University of Arizona. I am working with Dr. Steve Rains, who is an Assistant Professor in the Department of Communication. We are conducting a study about blogging and health and would greatly appreciate it if you would complete our survey. We found your blog by conducting a general search for blogs about health. We would like to know more about your experience blogging.

Our survey takes about 20 minutes to complete. To participate, you must be (a) 18 years of age or older and (b) have made a blog entry in the past 30 days.

If you meet these requirements and would like to participate, please click the link below. The study will be conducted online and the link will take you to the first webpage of the survey.

[Note: You may copy and paste the address directly into your web browser (i.e., Internet Explorer) to access the study.]

If you have any questions or concerns about the study, you may contact Dr. Rains at:

Thanks for your consideration!

Best Regards,

David Keating
David Keating
Department of Communication
University of Arizona

Jeffrey said...

each chronic illness has its own limitations and how to cure them, sometimes we think is a fad but the best person to determine it is the specialist, so they should always refer to medical specialist ..

Ali said...

There is much more information on Muscular Dystrophy in:
This site contains information On Pregnancy Diseases And Genetic Testing.

Shona said...

I am so sorry to hear of your loss. I didn't know Josh I have just found this blog when I was looking for disability blogs.

I have Myotonic dystrophy (also a kind of muscular dytrophy) and am blogging about my experiences of trying to have a baby without passing on my condition.

I wish you lots of luck in your blog and awareness campaign.

Ryan said...


I didn't know Josh but I have muscular dystrophy as well, I'm sorry for your loss. I would like to hear more about your brothers story so that I can help you spread the word and encourage others. Please feel free to contact me through my website and we can brainstorm ideas.


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