Defibrillator Dude
Since starting this blogging thing three years ago, I have met some very interesting people. Scott Sands certainly qualifies as one. Some of you reading this already know Scott, who is 43 and also blogs about living with Duchenne muscular dystrophy at Scott Sands Alive. I have learned a lot from him, from fighting for the care I need to learning how to look fashionable with a tracheostomy. Plus, it gives me hope to know that you can live into your 40s with DMD at a time when, sadly, guys with DMD are typically only living into their mid-20s at most. Scott has helped me through some tough times, usually by giving me a (virtual) kick in the ass! He also wrote a very nice review of my book.If you haven't paid a visit, Scott Sands Alive is a must read. People think I'm funny, but Scott is hilarious. He also pulls no punches about this life that he and I and countless others live. It is a life that was in jeopardy for Scott this week, when he experienced some frightening cardiac symptoms.
As I can tell you first-hand, you can be the toughest S.O.B. in the world (and Scott is) but when it's your heart, it's a scary thing! The good news is that Scott is now an official Defibrillator Dude, having undergone successful surgery this morning to implant a defibrillator in his chest. Sounds like he will be back to blogging very soon.
Welcome to the club, my friend. May your heartbeat be regular and your shocks be few!
2 comments:
very nice, Josh as always! Thank you for letting us know that Scott made it through with flying colors!
Here is a link to more information about the genetics of Muscular Dystrophy that was prepared by our genetic counselor and which has links to some useful resource for those dealing with this condition: http://www.accessdna.com/condition/Muscular_Dystrophy/428. There is also a number listed for anyone who wants to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNA
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